THE EXPERIENCES OF CHILDREN WITH DISABILITIES AND PRIMARY CAREGIVERS ON THE SOCIAL INCLUSION OF CHILDREN WITH DISABILITIES IN ETHIOPIA

  • Belaynesh Tefera Addis Ababa University
  • Alice Schippers VU University Medical Center
  • Marloes van Engen Tilburg University
  • Jack van der Klink Tilburg University
Keywords: quality of life, capability approach, low- and middle-income countries (LMICs), Ethiopia, social inclusion

Abstract

This article presents the findings of a qualitative study on the social inclusion of children with disabilities in Addis Ababa, Ethiopia and how this affects their achievement of valued life goals. The study is based on focus group discussions with children with disabilities and primary caregivers of such children. The thematic analysis is based on family quality of life and the capability approach, which are used to explain the effects of social inclusion (and exclusion) on children with disabilities and their families in three areas of quality of life: being, belonging, and becoming. The study also looked at how the social inclusion of children with disabilities can be actualised. The results of the study confirm the existence of considerable challenges to the social inclusion of children with disabilities in Addis Ababa, which is reflected in their capabilities. The results suggest that children with disabilities need assistance and support to achieve a good quality of life. They also indicate the need for the involvement of the wider community to support children with disabilities and their families to enhance the capability of such children, and so improve their family quality of life.

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Author Biographies

Belaynesh Tefera, Addis Ababa University
Instructor, School of Commerce, Faculty of Business and Economics
Alice Schippers, VU University Medical Center
Coordinating Senior Researcher, Disability Studies Unit, Medical Humanities Department
Marloes van Engen, Tilburg University
Department of Human Resource Studies, Faculty of Social and Behavioral Sciences
Jack van der Klink, Tilburg University
Full Professor, Tilburg School of Social and Behavioral Sciences, Tranzo (Centre for Care and Welfare)
Published
2018-12-04
How to Cite
Tefera, B., Schippers, A., van Engen, M., & van der Klink, J. (2018). THE EXPERIENCES OF CHILDREN WITH DISABILITIES AND PRIMARY CAREGIVERS ON THE SOCIAL INCLUSION OF CHILDREN WITH DISABILITIES IN ETHIOPIA. International Journal of Child, Youth and Family Studies, 9(4), 146-167. https://doi.org/10.18357/ijcyfs94201818645