Understanding the intergenerational effects of colonization: Aboriginal women with neurological conditions—their reality and resilience

  • Carrie Bourassa
  • Melissa Blind
  • Devin Dietrich
  • Eric Oleson
Keywords: Dementia, caregiving, Indigenous health, cultural safety, neurological degeneration, colonialism, healthcare, women's health

Abstract

The “Understanding from Within” (UFW) project was part of the National Health Population Study of Neurological Conditions (NHPSNC), a 4-year study aimed at better understanding the scope of neurological conditions in Canada, and funded by the Public Health Agency of Canada. The goal of the UFW project was to develop a better understanding of how Aboriginal people conceptualize neurological conditions and the impacts on their families and communities, and the resources and supports needed to provide culturally safe and appropriate care. The research was qualitative and used an Indigenous Research Methodologies (IRM) approach to guide the design, collection of data, and analysis. Two methods were used to collect information: in-depth interviews and research circles (focus groups). A total of 80 people participated in the research, 69 women and 11 men. In-depth interviews were undertaken with key informants (22), with Aboriginal people living with a neurological condition (18), and with Aboriginal people caring for someone with a neurological condition (40). This paper examines the physical, mental, emotional, and spiritual impacts of neurological conditions on Aboriginal people, primarily women. It also examines other themes that emerged from the narratives, including recommendations to healthcare providers and cross-cutting themes that are relevant to culturally safe care and how it relates to neurological conditions.

Published
2015-12-17
Section
Research Papers