Promoting Culturally Respectful Cancer Education Through Digital Storytelling

  • Melany Cueva Alaska Native Tribal Health Consortium
  • Regina Kuhnley Alaska Native Tribal Health Consortium
  • Anne Lanier Alaska Native Tribal Health Consortium
  • Mark Dignan University of Kentucky
  • Laura Revels Alaska Native Tribal Health Consortium
  • Nancy E. Schoenberg University of Kentucky
  • Katie Cueva University of Alaska Anchorage
Keywords: Alaska Native, community health workers, cancer education, digital storytelling, storytelling, health education, public health, health communication, Indigenous methods


Cancer is the leading cause of mortality among Alaska Native people. Over half of Alaska Native people live in rural communities where specially trained community members called Community Health Aides/Practitioners (CHA/Ps) provide health care. In response to CHA/Ps’ expressed desire to learn more about cancer, four 5-day cancer education and digital storytelling courses were provided in 2014. Throughout each course, participants explored cancer information, reflected on their personal experiences, and envisioned how they might apply their knowledge within their communities. Each course participant also created a personal and authentic digital story, a methodology increasingly embraced by Indigenous communities as a way to combine storytelling traditions with modern technology to promote both individual and community health. Opportunities to learn of CHA/Ps’ experiences with cancer and digital storytelling included a 3-page end-of-course written evaluation, a weekly story-showing log kept for 4 weeks post-course, a group teleconference held 1–2 weeks post-course, and a survey administered 6 months post-course. Participants described digital storytelling as a culturally respectful way to support cancer awareness and education. Participants described the process of creating digital stories as supporting knowledge acquisition, encouraging personal reflection, and sparking a desire to engage in cancer risk reduction activities for themselves and with their families and patients. As a result of creating a personalized digital story, CHA/Ps reported feeling differently about cancer, noting an increase in cancer knowledge and comfort to talk about cancer with clients and family. Indigenous digital stories have potential for broad use as a culturally appropriate health messaging tool.


American Institute for Cancer Research. (2015). What is cancer? Retrieved from

Archibald, J. (2001). Sharing Aboriginal knowledge and Aboriginal ways of knowing [Editorial]. Canadian Journal of Native Education, 25(1), 1–5.

Bureau of Indian Affairs. (2016). What we do. Retrieved from

Cueva, M. (2009). [Cancer education survey]. Unpublished data obtained at statewide Behavioral Health Aide conference (Anchorage AK, October 2009) and CHA/P Forum, Anchorage AK, April 2009.

Cueva, M., Kuhnley, R., Lanier, A., & Dignan, M. (2007). Story: The heartbeat of learning. Convergence, 39(4), 81–88.

Cueva, M., Kuhnley, R., Revels, L., Schoenberg, N., Lanier, A., & Dignan, M. (2015). Engaging elements of cancer-related digital stories in Alaska. Journal of Cancer Education. doi:10.1007/s13187-015-0826-z

Freire, P. (2003). Pedagogy of the oppressed (30th Anniversary Ed.). New York, NY: Continuum.

Gaydos, H. L. (2005). Understanding personal narratives: An approach to practice. Issues and Innovations in Nursing Practice, 49(3), 254–259. doi:10.1111/j.1365-2648.2004.03284.x

Golnick, C., Asay, E., Provost, E., Van Liere, D., Bosshart, C., Rounds-Riley, J., Cueva, K., & Hennessy, T. W. (2012). Innovative primary care delivery in rural Alaska: A review of patient encounters seen by community health aides. International Journal of Circumpolar Health, 71. doi:10.3402/ijch.v71i0.18543

Gray, N., Oré De Boehm, C., Farnsworth, A., & Wolf, D. (2010). Integration of creative expression into community-based participatory research and health promotion with Native Americans. Family & Community Health, 33(3), 186–192. doi:10.1097/fch.0b013e3181e4bbc6

Gubrium, A. (2009). Digital storytelling: An emergent method for health promotion research and practice. Health Promotion Practice, 10(2), 186–191. doi:10.1177/1524839909332600

Iseke, J., & Moore, S. (2011). Community-based Indigenous digital storytelling with elders and youth. American Indian Culture and Research Journal, 35(4), 19–38. doi:10.17953/aicr.35.4.4588445552858866

Jones, G. H., & Evans, A.-M. (2008). Hope, help and recovery. Mental Health Practice, 11(8), 32–37. doi:10.7748/mhp2008.

Kelly, J. J., Schade, T. L., Starkey, B. M., Ashokkumar, R., & Lanier, A. P. (2012). Cancer in Alaska Native people 1969–2008: 40-year report. Retrieved from Alaska Native Tribal Health Consortium website:

Kovach, M. (2009). Indigenous methodologies: Characteristics, conversations, and contexts. Toronto, ON: University of Toronto Press.

Kuhnley, R., & Cueva, M. (2011). Learning about cancer has brightened my light: Cancer education for Alaska community health aides and community health practitioners (CHA/Ps). Journal of Cancer Education, 26(3), 522–529. doi:10.1007/s13187-011-0207-1

Lambert, J. (2009). Digital storytelling: Capturing lives, creating community (3rd ed.). Berkeley, CA: Digital Diner Press.

Lanier, A., Holck, P., Kelly, J., Smith, B., & McEvoy, T. (2001). Alaska Native cancer survival. Alaska Medicine, 43(3), 61–69.

Matthews, J. (2014). Voices from the heart: The use of digital storytelling in education. Community Practitioner, 87(1), 28–30.

Mayo, W., & Natives of Alaska. (2002). Alaska Native ways: What the elders have taught us. Portland, OR: Graphic Arts Center.

Perkins, D. D., & Zimmerman, M. A. (1995). Empowerment theory, research, and application. American Journal of Community Psychology, 23(5), 569–579. doi:10.1007/bf02506982

Powell, T. B., Weems, W., & Owle, F. (2007). Native/American digital storytelling: Situating the Cherokee oral tradition within American literary history. Literature Compass, 4(1), 1–23. doi:10.1111/j.1741-4113.2006.00376.x

Robin, B., & McNeil, S. (2012). What educators should know about teaching digital storytelling. Digital Education Review, 22, 37–51.

State of Alaska. (2015). Alaska kids’ corner. Retrieved from

U.S. Census Bureau. 2010: Population finder. Retrieved from

U.S. Census Bureau. Race and Hispanic or Latino: 2010 Census [Alaska]. Retrieved from:

U.S. Census Bureau. ACS demographic and housing estimates: 2010–2014 American Community Survey 5-year estimates [Alaska]. Retrieved from

U.S. Preventive Services Task Force. (2015). Final update summary: Colorectal cancer: Screening. Retrieved from

Wexler, L., Gubrium, A., Griffin, M., & DiFulvio, G. (2013). Promoting positive youth development and highlighting reasons for living in northwest Alaska through digital storytelling. Health Promotion Practice, 14(4), 617–623. doi:10.1177/1524839912462390